Youngsters like brave Alfie Buck from Horsham would benefit from a charity having more volunteers helping to raise money.
Alfie has been helped by Horsham-based Action Medical Research, which is looking for more volunteers.
Apart from its other work the charity is also supporting research to help children with cerebral palsy, like Alfie, a lively nine-year-old who loves jokes and playing tricks on people.
His mother Samantha said:“He’s a cheeky boy who always wants to have fun”. But, for Alfie, having fun is a daily struggle.
Samantha said: “Alfie suffered devastating brain damage at birth. His muscles and his brain cannot ‘talk’ to each other so he is unable to control the way his body moves.”
With funding from Action, researchers in London and Southampton are are using magnetic resonance imaging (MRI) to study how damage to the brain relates to loss of movement and coordination. The hope is that one day, doctors will be able to use these new brain scans to help them predict what sort of movement difficulties children with cerebral palsy are likely to experience in the future, which could help parents feel more prepared and make it easier to plan children’s care.
To help work like this Action Medical Research is on the hunt for new volunteers in Horsham
From organising coffee mornings to fashion shows and quiz nights to dinner dances or helping out at its popular cycling events, there are many ways people can get involved and help make a difference to the lives of children like baby Samuel, who was born two months early weighing less than 4lbs, or Tom, who has the fatal muscle-wasting condition Duchenne muscular dystrophy.
Paula Ray, Action Medical Research’s Community Fundraising Regional Manager said:
“Volunteers are a crucial and highly valued part of our team and we’d love to find more people in Horsham who are willing to give up their time for this amazing cause
“We’re especially keen to establish new groups in the area, whether it’s a group of friends willing to hold regular events or a team of colleagues undertaking a series of fundraising challenges.
“There are hundreds of thousands of children in the UK whose lives are devastated by disease and disability. It’s too many. Far too many. Research can put a stop to this, but we need your help. Join our fight for little lives and volunteer with us today.”
Anyone interested in helping to raise funds for Action Medical Research in 2016, may email Paula Ray at firstname.lastname@example.org or call 07709 534366. For further information visitaction.org.uk/volunteering